May 11, 2016 |
christine |
Featured, Spoon Lady Speaks |
45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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TAGS: awareness, fibro, fibromyalgia, may 12, spoonie
May 10, 2016 |
christine |
Articles, Featured, Personal Essays |
20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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TAGS: angry, dad, jello, lupus, metaphor, miserandino, sle
May 9, 2016 |
christine |
Featured, Spoon Lady Speaks |
6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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TAGS: lupus, lupus awareness, may 10, orange, purple, sle, spoonie
Using Writing and other Artistic Expressions to Cope Speaker: Christine Miserandino, Owner of Butyoudontlooksick.com, lupus advocate, frequent lecturer on lupus, and Board member of the Lupus Alliance of America LIQ Affiliate
When: Saturday, October 22nd, 2011
Where: North Bellmore Public Libr
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It is the middle of October and you know what that means to us here at Butyoudontlooksick.com and in my family... It is Lupus Awareness month. For this month, I try to post mostly about Lupus or lupus related stories, reviews etc. I also spend a lot of time talking about my efforts with the Lupus Wa
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I have been working at living my life transparently. To live my life transparently means that I live my life openly, that I share what I’m going through, my ups and downs, my successes and failures, my struggles and disappointments as well as my successes and happy moments. To live my life transpa
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Oops, I forgot. For a few moments or what stretched out to a few hours, I thought I was living the life of a normal person. Who was I kidding though, forgetting that living with an auto-immune disease could ever really be normal? Thinking that I had some unlimited source of energy enough to tackle a
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For those of us with Lupus, it is a very definite, consuming and frustrating disease. For those of you who love someone with Lupus, it too can be a very frustrating disease. And as hard as it is for you to try and understand what Lupus is and how it wreaks havoc on our lives, please also try and rem
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Christine Miserandino of ButYouDontLookSick.com will be the keynote speaker starting off the day at the Annual Living Well With Lupus Symposium
Lupus Foundation of America - Philadelphia Tri state chapter
Saturday, October 1, 2011
Springfield Township High School
1801 East Paper Mill Road
Erd
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Remember when I was thankful my brother didn’t get my illnesses?
He’s beginning to get it.
After Justin graduated college in May, he moved back in with my parents until he could tie up loose ends and leave the area. My parents live on a lake, so Justin was enjoying a great summer.
Until
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The hardest lesson I've had to learn in living with chronic illnesss is that I can't do it all. I'm a overachiever by nature. I want to do it all, have it all, see it all, be the girl who never says no. Letting people down, and of course, myself down, was the horror that I feared more than anything.
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Dr. Scholl's conjures up images of thick, white orthopedic shoes...not light, comfortable flats. So about a year ago when they first came out with their Fast Flats, I was initially skeptical. A comfortable pair of shoes that fits in your purse? Yeah, right. Even if the brand is known for comfort, it
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Many Americans often fall short on getting the nutrients their bodies need. Dietary supplements are intended to supplement the diet where there may be nutrient shortfalls. Vitamins and minerals work together to keep the body growing and functioning normally. They help convert food into energy, keep
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