May 11, 2016 | christine | Featured, Spoon Lady Speaks | 45 Comments
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen her in pain both emotionally and physically.
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May 10, 2016 | christine | Articles, Featured, Personal Essays | 20 Comments
If you ask my dad about Lupus he will give you a very seemingly odd answer. He will always say “Getting a grip on Lupus is like trying to tie up Jello with a string” Most people laugh, look confused, or even attempt to think of how one would even begin to tie up Jello with a string. It's one
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May 9, 2016 | christine | Featured, Spoon Lady Speaks | 6 Comments
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with
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So, it is almost the end of February, and I think I am the last person to see this video/ commercial! I wish more awareness compaigns were this memorable. Everyone has been telling me to check out this video by the American Heart Association, Go Red for Woman. It is funny because it is true, which i
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Every once in a while a book, a movie, or a TV show comes along that really touches your heart- your core. It makes a difference in your life and resonates with you, as something special. Recently, I read Brenda Blackman's book "A Mom's Story" and it was that same kind of experience. "A Mom's Story"
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Empowered means to invest with authority, to authorize. In recent usage, empowered has come to mean control of your own destiny. Who does not want to be in control? I know I do, but living with Lupus and Fibromyalgia it can sometimes we can't control anything. It can make me want to scream, especial
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Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But You Don't Look Sick" seemed to be all I heard. Is this a good thing? Sometimes it is an appropriate thing to say after a speaking engagement, or when I used to act in class, etc. M
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A few months ago, I was in a local health food store and saw a sad but familiar sight: a woman with an utterly bewildered expression standing in the gluten-free aisle. I asked her if I could help her find something, and she said, "I don't know! The doctor told me today that I have celiac disease and
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OK, I admit I am not the most tech savvy person around. I am over 60 and sometimes I feel like the computer world is literally passing me by, or I should say whizzing by. First I mastered email, then I discovered perusing the Internet and next I found Facebook, but I do all of this kicking and scre
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One of the most anticipated films of 2012 that is not a sequel has reached theatres. "The Hunger Games", based on the novel by Suzanne Collins (she also contributed to the screenplay), is a disturbing yet riveting look at a future that one would hope could never happen. It gives us a very plausible
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Sjogren's syndrome is an autoimmune disease that, while not rare, is not widely known. Until tennis star Venus Williams revealed recently that she had been diagnosed with it, most of the general public had not heard of it. That is why this book, published in September, is so necessary. Sjogren'
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January is the perfect time to honor the people who help others through the simple act of giving blood. If you can't give blood due to medical reasons, you can use this time to encourage friends and family to donate, or even help at a local blood drive. Since 1970, January has been known as Nat
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Do you have a profile picture, icon, or "avatar" that you use on facebook or twitter, etc. Support I'm a Spoonie! add a #spoonie twibbon to your avatar now! People have seen others on facebook and twitter with the spoon on their pics and it is SO easy to do! So many have asked me how! Join over 10,0
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Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
