Who knew a simple thing like a phone could make life so much easier? Vtech phone system LS6475-3

Who knew a simple thing like a phone could make life so much easier? Vtech phone system LS6475-3

I recently received a new phone system and I am in love. Who knew such a simple thing as a phone could make your life so much easier, and any mom knows that she needs to make her life easier.The VTech phone system, model LS6475-3 is a cordless hands free phone, with two handsets. I first loved it be

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Product Review: KIND Bars Snacks - Yummy, Healthy, Easy and Gluten-Free!

Product Review: KIND Bars Snacks – Yummy, Healthy, Easy and Gluten-Free!

It can be tricky when you are on a special diet, like gluten-free or are simply trying to eat healthier. Seems like the most nutritious foods aren't very appealing, and the most yummy goodies are nothing more than empty calories that derail you from your goals. And what about convenience? You want

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The

The “spoonie” Small Print

Batteries not included. Shipping and handling extra. Minimum purchase required. Small print is everywhere and on just about everything. I come with a Spoonie version of small print: if I feel up to it. Whenever I make plans, I always have to add “if I feel up to it.” I never know how I will f

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Christine Miserandino was on

Christine Miserandino was on “The Revolution” Wednesday 3-28 with Toni Braxton talking about Lupus

I was so proud to share the stage with Dr. Jen, and Toni Braxton to talk about living with lupus. It was an amazing experience! The Original airdate was Wednesday 3/28/2012 I have embedded the video below for those of you who missed it, or for our readers who are out of the country and to not get t

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We have reached over 41,000

We have reached over 41,000 “likes” on our facebook fan page!

We are so excited to have over 41,000 "likes" on our facebook fan page! As much as we are excited to have formed this community of great people using technology to share information and support, it of course also makes me sad that we need that support. We as patients need to be empowered to reach ou

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Book Review

Book Review “A Mom’s Story” by Brenda Blackmon

Every once in a while a book, a movie, or a TV show comes along that really touches your heart- your core. It makes a difference in your life and resonates with you, as something special. Recently, I read Brenda Blackman's book "A Mom's Story" and it was that same kind of experience. "A Mom's Story"

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Book Review - The Empowered Patient How to Get the Right Diagnosis, Buy the Cheapest Drugs, Beat Your Insurance Company, and Get the Best Medical Care Every Time

Book Review – The Empowered Patient How to Get the Right Diagnosis, Buy the Cheapest Drugs, Beat Your Insurance Company, and Get the Best Medical Care Every Time

Empowered means to invest with authority, to authorize. In recent usage, empowered has come to mean control of your own destiny. Who does not want to be in control? I know I do, but living with Lupus and Fibromyalgia it can sometimes we can't control anything. It can make me want to scream, especial

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Pay no attention to the girl behind the smile -what I wish people knew about me.

Pay no attention to the girl behind the smile -what I wish people knew about me.

Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But You Don't Look Sick" seemed to be all I heard. Is this a good thing? Sometimes it is an appropriate thing to say after a speaking engagement, or when I used to act in class, etc. M

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Medically Necessary Diet? Don't Freak Out!

Medically Necessary Diet? Don’t Freak Out!

A few months ago, I was in a local health food store and saw a sad but familiar sight: a woman with an utterly bewildered expression standing in the gluten-free aisle. I asked her if I could help her find something, and she said, "I don't know! The doctor told me today that I have celiac disease and

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