We are so excited to have over 41,000 "likes" on our facebook fan page! As much as we are excited to have formed this community of great people using technology to share information and support, it of course also makes me sad that we need that support. We as patients need to be empowered to reach ou
[ 9 comments ] | [ read more ]
It was an honor to be interviewed by Christina Relacion from the Scleroderma Foundation for their Summer edition of Scleroderma Voice magazine. It is a true testament to the fact that "The Spoon Theory" now has a much wider audience then just lupus patients as I originally thought. The chronically i
[ 4 comments ] | [ read more ]
I had the opportunity to speak with Tim Abbott of the radio show "Technical Difficulties". He is a great guy, so easy to speak to that the time just flew! Technical Difficulties is a weekly radio show about disability on Resonance 104.4 FM in London at 3.30pm on Fridays. Technical Difficulties is
[ 2 comments ] | [ read more ]
You guys have been asking for this for a LONG time. This is me reading "The spoon theory" live at a Lupus Symposium. This video is from the speaking appearance at the Piedmont, NC LFA on September 11, 2010. Thank you to them for having me, and to Stealth Awareness for making the video. Please
[ 65 comments ] | [ read more ]
A slide show movie of my life, how "the spoon theory" started, and how this HUGE internet community has been formed around the world to give support, encouragement and information by using butyoudontlooksick.com and #spoonie to connect. This has been an incredible ride! THANK YOU! PLEASE share th
[ 29 comments ] | [ read more ]
The Fortune 52 weekly column in The Long Island Press written by Associate Publisher, Beverly Fortune, honors local women who lead multiple lives, making significant and unique contributions in their community or workplace: women from all walks of life. The lives and work of these women who inspire
[ no comments ] | [ read more ]
Christine Miserandino-Donato, board member of the Lupus Alliance of America, is featured in a recent edition of Legislative Report with Senator Kemp Hannon (R-NY) to promote Lupus Awareness Month. In the interview is also JoAnn Quinn the executive director of the Lupus Alliance, Long Island/ Que
[ no comments ] | [ read more ]
May is Lupus Awareness Month! How Will You Spread Awareness? See Christine's television appearance focusing on living life with lupus.. Keeping Kids Healthy (PBS and American Public Television) Nationally Syndicated Won a 2005 New York Emmy Award EPISODE 401 - Lupus: A Medical Mystery *Check your l
[ one comment ] | [ read more ]
We are proud to announce that we have been chosen to be featured on AllTop.com’s Lupus and Health sections! Thanks to Guy Kawasaki for suggesting butyoudontlooksick.com to be featured with such great company! Check out alltop.com for other great websites and blogs. AllTop.com is sort of a “dig
[ no comments ] | [ read more ]
On Semptember 8th 9am EST Christine Miserandino kicked off "National Invisible Illness Week" in a casual conversation with the Lisa Copen. We took questions and comments from phone in callers. We even received a surprise call from Christine's husband Frank. We talked about being mothers with Chronic
[ one comment ] | [ read more ]
In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
