To be separated
Body and mind
Split between thoughts of love
And questions for the enemy
Yet they both reside
In the same body
In my body
There are no answers
Just community
A family of people like myself
Found here
Yet spread all around the world
Provide strength
[ 7 comments ] | [ read more ]
I didn't know back then that life would change forever. I didn't know what pain was then. I didn't know the sacrifices and allowances I would end up making. I didn't know my hair could hurt. I didn't know that I would have to give up the things that brought me the most joy because I just couldn't do
[ 44 comments ] | [ read more ]
I tire of my body. I tire of my pain. I tire of the whirlwind scraping the walls of my skull. I tire of the weeping willow cracking and sprouting within thine eyes. I tire of courage. I tire of strength. I tire of personal earthquakes that make morning coffee a joke! I tire of cramping: calf, thigh,
[ 63 comments ] | [ read more ]
A poem submitted by one of our writers and she also has been reading our site for some time now. She lives with Fibromyalgia.
Fibro, A poem.
Could you imagine being 20 years old,
30 years old,
And being stuck in the body of a 90 year old?
Watching your skin turn to hell and flake, away
[ 37 comments ] | [ read more ]
I found this video on youtube last night. (Yes, I couldn't sleep again) But I feel that maybe I was meant to find this video and share it with all of you. The video shows a performance of live poetry by Shanelle Gabriel from Brooklyn, NY. Not only did I identify completely with her words and experie
[ 17 comments ] | [ read more ]
A poem submitted by one of our readers.
I sit staring out my window again
Stuck in this room
By an illness that won’t let me free
I look out at the rain
And feel
Blue with sadness for
All that was, is and never will be
Red with frustration and anger
Hating the pain and endless days
Green with en
[ 7 comments ] | [ read more ]
A Poem submitted by one of our ButYouDontLookSick.com members.
If you could live in my body,
just for a day,
maybe you wouldn't think
that I feel okay.
You might understand
what it's like to be tired
by just trying to live,
just doing what's required.
If you could live in my body
you might begin t
[ 26 comments ] | [ read more ]
The cold makes me hurt, brings illness to my cramped indoors and makes me dress my son up like an Eskimo and then rush to get him undressed when he has to pee after the hour long dressing process and before we get out the door. Snowflakes, I should only find them a dreary misery. However, I love the
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A poem submitted by one of our readers.
I stand here naked
Looking in the mirror
Sad because
My body is not what it used to be
It was once so tough
A dancer’s body both soft and strong
Now it has been weakened by this
It is not the body I know
Legs that won’t hold me up
Shape I wish I did not
[ 3 comments ] | [ read more ]
This month we had a contest and asked some of our readers, members and volunteers to write a creative peice about What has BYDLS and "the spoon theory" meant to you?
Sharon Onyett ("Shazinoz", her bydls.com message board name) submitted this poem.
“But you Don’t Look Sick”
Is an often heard
[ 5 comments ] | [ read more ]