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Stepping into the Shower with Chronic Illness

Ah, showering. That major task that, for those of us with a chronic illness, ranks right up there on the energy scale with oh, lawncare? Home renovation? Maybe car repairs? Why, I have to schedule personal hygeine days right along with doctor appointment days, grocery shopping days, and all those da

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Stepping into the Shower with Chronic Illness

Ah, showering. That major task that, for those of us with a chronic illness, ranks right up there on the energy scale with oh, lawncare? Home renovation? Maybe car repairs? Why, I have to schedule personal hygeine days right along with doctor appointment days, grocery shopping days, and all those da

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But You Don’t Look Sick Poem

This poem was submited by one of our readers/ message board members about our site. I know you will love it as much as we did. ____________________________________________________ “But you don’t look sick “is a wonderful site For thousands of people who are having to fight A chronic illness

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Product Review: Hot Off The Press Card Making Supplies

I have been stuck in the house with nothing to do while my body recuperates from being in the hospital. Friends had suggested I take up a hobby or a craft to pass the time and to feel a sense of accomplishment. I was not really in the mood to do anything "cheery," so when I first thought of scrapboo

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Product Review: Hot Off The Press Card Making Supplies

I have been stuck in the house with nothing to do while my body recuperates from being in the hospital. Friends had suggested I take up a hobby or a craft to pass the time and to feel a sense of accomplishment. I was not really in the mood to do anything "cheery," so when I first thought of scrapboo

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Not So Invisible Anymore?

My daughter Christine has, what is sometimes called, an invisible disease. Though she looks teriffic most of the time, she has suffered, for over a dozen years, with the debilitating and painful symptoms of Lupus. It's become an inside family joke when people commented almost incredulously- "but yo

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Not So Invisible Anymore?

My daughter Christine has, what is sometimes called, an invisible disease. Though she looks teriffic most of the time, she has suffered, for over a dozen years, with the debilitating and painful symptoms of Lupus. It's become an inside family joke when people commented almost incredulously- "but yo

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3 Steps to Maintaining Friendships through the Chaos of your Illness

I was sixteen when I was first diagnosed with Systemic Lupus. At that age, most teenagers are at the height of self-expression and feelings of invisibleness. Making friends and sharing who you are with your friends is one of the most cherished parts of youthfulness. But when you are teenager with a

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3 Steps to Maintaining Friendships through the Chaos of your Illness

I was sixteen when I was first diagnosed with Systemic Lupus. At that age, most teenagers are at the height of self-expression and feelings of invisibleness. Making friends and sharing who you are with your friends is one of the most cherished parts of youthfulness. But when you are teenager with a

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Redefining The “Bad Month”

A good friend of mine just asked in an email whether, for those of us fighting chronic diseases, "Is there EVER a good month?" Boy did that make me think... IS there? Doing a fast rewind of my last 6 months I realized that I have been postponing lots of things, cancelling activities, failing to k

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