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How do you describe your pain? Numbers on Pain Scale, Adjectives, Silly Weird Pain Faces.

How do you describe your pain? Numbers on Pain Scale, Adjectives, Silly Weird Pain Faces.

I hear it all the time from doctors and nurses: "Tell me your pain on a scale from 1 to 10". I always cringe at the thought of summarizing my pain and fatigue down to a number. I also get scared at the thought that I have never felt below a 4 or 5. How can every patient from a broken leg, to a chemo

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I made a healthy little switch to Musselman's Applesauce. Small diet changes can make a big difference.

I made a healthy little switch to Musselman’s Applesauce. Small diet changes can make a big difference.

How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a little judgment I can even account for the Muss

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I am Sick, NOT Stupid.

I am Sick, NOT Stupid.

Many years ago I heard a joke that was going around and it went like this. A guy was going home from the auto mechanic and just as he was passing a psychiatric center, a wheel fell off his car. He stopped, surveyed the situation and realized that the mechanic must have been distracted and never p

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Painsomnia - Tick tock, tick tock, the clock keeps moving...

Painsomnia – Tick tock, tick tock, the clock keeps moving…

My mind won’t stop working. Tick, tock, tick, tock…many nights I just can’t sleep and the only companion I have is the clock and a teddy bear. Teddy doesn’t talk and I can’t get the clock to “SHUT UP”. I know, it’s just my brain trying to work things out but still I AM AWAKE. Some

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Painsomnia - Tick tock, tick tock, the clock keeps moving...

Painsomnia – Tick tock, tick tock, the clock keeps moving…

My mind won’t stop working. Tick, tock, tick, tock…many nights I just can’t sleep and the only companion I have is the clock and a teddy bear. Teddy doesn’t talk and I can’t get the clock to “SHUT UP”. I know, it’s just my brain trying to work things out but still I AM AWAKE. Some

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No Rhyme or Reason. I have done all I can do.

No Rhyme or Reason. I have done all I can do.

What to do when you have done everything, and still feel like crap. There are days when I feel really crappy. Maybe I didn’t take my meds on time or I overdid the day before. What I really hate is when I seem to have done everything right and I still feel so wrong. The other day the weather was

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30 Things About My Invisible Illness You May Not Know

30 Things About My Invisible Illness You May Not Know

Many prominent bloggers were asked to participate in this simple blog post meme to help spread awareness during Invisible Awareness Week (September 11-18th) I think it is important to participate in these things because as much as this website, my speaking and writing have brought me into the public

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The Spoon Theory written by Christine Miserandino

The Spoon Theory written by Christine Miserandino

Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness or disability. Click HERE to download "The Spoon Theory" in PDF format. The Spoon Theory by Christine Miserandino www.butyoudontlooksick.com My best friend and I were in t

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It is 5am. It’s a horrible, ugly hour to wake up, not yet morning, not quite night. Painsomnia?

It is 5am. It’s a horrible, ugly hour to wake up, not yet morning, not quite night. Painsomnia?

It is 5am. I can't sleep. We have been here before, me and insomnia. It is a date, we know each other well, but I wish I didn't. As many times as I am at night,and can't fall asleep... you never get used to it. It’s a horrible, ugly hour to wake up, not yet morning, not quite night. Nobody pla

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The Death of a Dancer - Who am I?

The Death of a Dancer – Who am I?

I was born a dancer. Well, I guess I was born a little girl who liked to move then I became a dancer. As a baby, music soothed me and I loved to wiggle and move. My mother remembers me spinning and twirling around the house to any music that was playing on the radio. When I didn’t have music, I wo

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