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Spoonie question of the day: Have you ever been mistreated, or made to feel uncomfortable because your disease or disability was invisible or not obvious?

How did you handle it? Did you choose to keep quiet and ignore it? Did you speak to that person or ask to speak to a manager? If you wrote a letter or said something- please share here in the comments section some of your wording. Many people can't find the right words, but maybe if we all share

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February #GoRed for Woman Director’s Cut of “Just a Little Heart Attack” Video with Elizabeth Banks

So, it is almost the end of February, and I think I am the last person to see this video/ commercial! I wish more awareness compaigns were this memorable. Everyone has been telling me to check out this video by the American Heart Association, Go Red for Woman. It is funny because it is true, which i

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Book Review - The Empowered Patient How to Get the Right Diagnosis, Buy the Cheapest Drugs, Beat Your Insurance Company, and Get the Best Medical Care Every Time

Book Review – The Empowered Patient How to Get the Right Diagnosis, Buy the Cheapest Drugs, Beat Your Insurance Company, and Get the Best Medical Care Every Time

Empowered means to invest with authority, to authorize. In recent usage, empowered has come to mean control of your own destiny. Who does not want to be in control? I know I do, but living with Lupus and Fibromyalgia it can sometimes we can't control anything. It can make me want to scream, especial

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Pay no attention to the girl behind the smile -what I wish people knew about me.

Pay no attention to the girl behind the smile -what I wish people knew about me.

Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But You Don't Look Sick" seemed to be all I heard. Is this a good thing? Sometimes it is an appropriate thing to say after a speaking engagement, or when I used to act in class, etc. M

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Product Review: HP ePrint printer Photosmart 5510 Now printing gets even easier!

Product Review: HP ePrint printer Photosmart 5510 Now printing gets even easier!

OK, I admit I am not the most tech savvy person around. I am over 60 and sometimes I feel like the computer world is literally passing me by, or I should say whizzing by. First I mastered email, then I discovered perusing the Internet and next I found Facebook, but I do all of this kicking and scre

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Movie Review:

Movie Review: “The Hunger Games” Have you seen it yet?

One of the most anticipated films of 2012 that is not a sequel has reached theatres. "The Hunger Games", based on the novel by Suzanne Collins (she also contributed to the screenplay), is a disturbing yet riveting look at a future that one would hope could never happen. It gives us a very plausible

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Book Review:

Book Review: “The Sjogren’s Book, Fourth Edition”, edited by Daniel J. Wallace, M.D.

Sjogren's syndrome is an autoimmune disease that, while not rare, is not widely known. Until tennis star Venus Williams revealed recently that she had been diagnosed with it, most of the general public had not heard of it. That is why this book, published in September, is so necessary.  Sjogren'

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January is National Blood Donor Month

January is National Blood Donor Month

January is the perfect time to honor the people who help others through the simple act of giving blood.  If you can't give blood due to medical reasons, you can use this time to encourage friends and family to donate, or even help at a local blood drive. Since 1970, January has been known as Nat

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Support I’m a Spoonie! add a #spoonie twibbon to your avatar/ profile now! – OVER 10,000 people have – join us!

Do you have a profile picture, icon, or "avatar" that you use on facebook or twitter, etc. Support I'm a Spoonie! add a #spoonie twibbon to your avatar now! People have seen others on facebook and twitter with the spoon on their pics and it is SO easy to do! So many have asked me how! Join over 10,0

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