My "Waiting Bag"- Since I unfortunately spend alot of time in doctors' waiting rooms, I quickly learned to make the most of this seemingly wasted time.
I learned this skill from my over achiever mother, who used every moment as a chance to get something done. Since I became sick at a young age,
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I use heating pads almost every day. The have become a part of my nightly ritual before bed partly because I have sore muscles often and heat helps; but also because I tend to have bad circulation and I am frequently cold. It is not always convenient to use a popular type microwave heating pad espec
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We have an amazing group of butyoudontlooksick.com fans on Facebook! They really are great, and to make it even better you will get little notes from me (christine) you even will have quick easy access to our new articles etc. PLease take a moment and join us by pressing the "like" button if you hav
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I recently participated in a program called Photo I.D. which is a 2-3 minute mini-biography using pictures and your voice only. This will be aired on Verizon Fios Channel 1 in New Jersey and Long Island. It was a fun experience. Here is the video!
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My daughter Christine has Lupus and she thinks she is invincible. She tries to overcompensate for the times she feels like hell, by being Superwoman, Supermom and Martha Stewart, all rolled into one.
In the weeks preceeding Christmas her home looked like a Winter Wonderland, tastefully decorated wi
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Last week, my husband Frank, our daughter Olivia, and I started getting out our holiday decorations. We were very excited to celebrate, because last year, lupus quite simply stole our holiday. We were determined that this year was going to be different. We decided to play Christmas music, dance and
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Contemplating what you should give a loved-one or close friend, suffering from a chronic illness this holiday season? How about a Tee-shirt that reads ‘Lupus Sucks’ or ‘Fibromyalgia Sucks' ? Look no further than the Butyoudontlooksick.com online store. Offering apparel and merchandise with a t
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Sometimes I feel lost. Lost behind the world of the diagnosed.
There are no fundraisers for me. No walks, no T-shirts, bracelets or ribbons. I am the lost within the lost. Aren't we all in some respect? Trapped by our bodies and lost to the world. A Spoonie KNOWS what it feels like to cry in that
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This is the time of year that inspires us to examine our lives with a closer look and make a checklist of what we are truly thankful for. No matter what your religion or your background, Thanksgiving has become a national holiday where we are reminded to take an inventory of the many blessings we of
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