FDA approves Benlysta to treat lupus First new lupus drug approved in 56 years The U.S. Food and Drug Administration today approved Benlysta (belimumab) to treat patients with active, autoantibody-positive lupus (systemic lupus erythematosus) who are receiving standard therapy, includi
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Today is Lupus Foundation of America's 2011 Advocacy Day. Join me to urge Members of Congress to support increased funding for lupus research and education programs. Visit http://capwiz.com/lfa to make your voice heard. Don't be afraid, just write what is in your heart. Write what you would want to
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Now that my hands have been giving me more problems than usual, I was finding it very hard to lace and tie my sneakers. I hated the idea of not wearing my favorite sneakers, but I didn't think I had any other option. I found speedlaces.com and saw a simple solution. This little lacing tool w
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I had a bad week. I wasn't feeling well and I felt so useless because I couldn't get the things I wanted done, accomplished. I was tired with a fever and I just didn't seem to have the energy to run errands. A friend of mine suggested I try peapod.com It is an online grocery store and they deli
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How many times have we all felt that we just KNEW something was wrong. We know our bodies, we listen to that little voice in our soul that tells us when something isn't right. But how many times do we ignore it? Unfortuntaly for Serene Branson this happened live on television as she experienced a se
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If you are in South Florida, you are invited to this FREE event! Come see Christine speak at "The Chronically Sweet Affair" this Saturday February 12 from 1:30-3pm The Lupus Foundation of America’s Southeast Florida Chapter is hosting its 1st Annual Valentine’s event, A Chronically Sweet A
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Help Raise money for Lupus and go meet Lady GaGa... what can be better! Win 2 Tickets to see Lady Gaga Live in Concert at the Nassau Coliseum. Plus get a private picture taken with you and Lady Gaga!! This is a great fundraiser being run by the Lupus Alliance of America - Long Island/ Queens a
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Please send prayers, love and spoons to her by posting here. We will keep you updated as we know more. Get well soon! -Christine 2/4 - Stephanie is now home. She is feeling a bit better and will post here when she can.
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My "Waiting Bag"- Since I unfortunately spend alot of time in doctors' waiting rooms, I quickly learned to make the most of this seemingly wasted time. I learned this skill from my over achiever mother, who used every moment as a chance to get something done. Since I became sick at a young age,
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I use heating pads almost every day. The have become a part of my nightly ritual before bed partly because I have sore muscles often and heat helps; but also because I tend to have bad circulation and I am frequently cold. It is not always convenient to use a popular type microwave heating pad espec
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Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
