Do you dress to impress or do you dress how you really feel? That quickly became the big question for me yesterday on twitter. What started as a joke between some new friends I made, really had me thinking. I am cheduled to speak at the #140conference in NYC about Lupus, health related support�
[ 22 comments ] | [ read more ]
Come celebrate my birthday in NYC! We are bringing together family, friends, "spoonies", and some new online friends to have a special night for a great cause! Wednesday July 20th from 6:30- 9pm at the RS Pop Shop -Roger Smith Hotel in NYC we have planned the perfect happy hour... a ton of fun w
[ 9 comments ] | [ read more ]
Christine Miserandino founder of ButYouDontLookSick.com and author of "The Spoon Theory" was featured in New York Newsday on Sunday May 1, 2011. We know that many of our readers wanted to see this, but could not access the website directly to see and read the article. We have attached article and ph
[ 6 comments ] | [ read more ]
Hi Everyone, Christine will be on a panel discussing Lupus and Twitter at the #140conference in NYC. She will be sharing the stage with Amanda Greene (lalupuslady), Brenda Blackmon and Kelly Dawn. The entire conference is online and starts at 8am. But.. our panel discussion is at 3:40 EST Th
[ no comments ] | [ read more ]
A way long over due thank you is in order to Jessica Rowshandel, director of social services for the SLE Lupus Foundation in NYC. She featured "The Spoon Theory" when answering a question for her bi monthly column "Ask Jessica". The question was about telling family and friends about lupus and havin
[ no comments ] | [ read more ]
The list below are toll free phone numbers for health information (US, unless stated otherwise). This alphabetical list might help you in your quest for more disease specific medical information. 1-800-Toll Free Numbers for Health Information Al-Anon/Alateen World Service Office Headquarters,
[ 17 comments ] | [ read more ]
Helpful Medical Abbreviations On the message boards, our Facebook Fan Page, reading our main site/ online magazine, or in day to day conversations, you may find that people use many abbreviations when talking about a diagnosis, a medication or other phrases. This alphabetical list might help yo
[ 39 comments ] | [ read more ]
May is Lupus Awareness Month! How Will You Spread Awareness? I used to get more confused and upset by the words surrounding this disease then Lupus itself. Hopefully the following list of terms will help you. These terms that are generally associated with the symptoms, diagnosis, and treatment of l
[ 2 comments ] | [ read more ]
You guys have been asking for this for a LONG time. This is me reading "The spoon theory" live at a Lupus Symposium. This video is from the speaking appearance at the Piedmont, NC LFA on September 11, 2010. Thank you to them for having me, and to Stealth Awareness for making the video. Please
[ 65 comments ] | [ read more ]
March 9, 2011 – I will remember this day, Benlysta was approved and hope was born. I will never forget the day I was diagnosed with Lupus. That was 18 years ago, and I am now 33. For those of you doing the math, that means I have had Lupus over half my life. Right now Lupus is incurable, so I exp
[ 32 comments ] | [ read more ]
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
