FYI - July 26th marks the 21st anniversary of the Americans with Disabilities Act. Know your rights: http://www.ada.gov
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Hi everyone, If you haven't yet made the decision to join me TODAY July 20th Wednesday night for some shopping, cupcakes, cocktails and fun!NOW is the time to do it! Come to the famous RSPop help me celebrate my birthday and the 8th anniversary of ButYouDon'tLookSick.com by raising money for the L
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Do you dress to impress or do you dress how you really feel? That quickly became the big question for me yesterday on twitter. What started as a joke between some new friends I made, really had me thinking. I am cheduled to speak at the #140conference in NYC about Lupus, health related support�
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Come celebrate my birthday in NYC! We are bringing together family, friends, "spoonies", and some new online friends to have a special night for a great cause! Wednesday July 20th from 6:30- 9pm at the RS Pop Shop -Roger Smith Hotel in NYC we have planned the perfect happy hour... a ton of fun w
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Christine Miserandino founder of ButYouDontLookSick.com and author of "The Spoon Theory" was featured in New York Newsday on Sunday May 1, 2011. We know that many of our readers wanted to see this, but could not access the website directly to see and read the article. We have attached article and ph
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Hi Everyone, Christine will be on a panel discussing Lupus and Twitter at the #140conference in NYC. She will be sharing the stage with Amanda Greene (lalupuslady), Brenda Blackmon and Kelly Dawn. The entire conference is online and starts at 8am. But.. our panel discussion is at 3:40 EST Th
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A way long over due thank you is in order to Jessica Rowshandel, director of social services for the SLE Lupus Foundation in NYC. She featured "The Spoon Theory" when answering a question for her bi monthly column "Ask Jessica". The question was about telling family and friends about lupus and havin
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The list below are toll free phone numbers for health information (US, unless stated otherwise). This alphabetical list might help you in your quest for more disease specific medical information. 1-800-Toll Free Numbers for Health Information Al-Anon/Alateen World Service Office Headquarters,
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Helpful Medical Abbreviations On the message boards, our Facebook Fan Page, reading our main site/ online magazine, or in day to day conversations, you may find that people use many abbreviations when talking about a diagnosis, a medication or other phrases. This alphabetical list might help yo
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May is Lupus Awareness Month! How Will You Spread Awareness? I used to get more confused and upset by the words surrounding this disease then Lupus itself. Hopefully the following list of terms will help you. These terms that are generally associated with the symptoms, diagnosis, and treatment of l
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In addition to my lupus, I also have fibromyalgia. One of my best friends was recently diagnosed with it as well. I love her. I feel that although pain and fibro is something I know a bit about, I can not help her acceptance of this diagnosis. I have seen ...
More: May 12 is International Fibromyalgia Awareness Day!
Wear orange or purple, send friends your favorite awareness websites (bydls.com ? lol) to educate, read, ask your friends to read some lupus facts, make your status a lupus support or awareness message, blog about lupus, blog about your friends with lupus, Do something nice for a person living with ...
More: May 10th is Lupus Awareness Day! Have you loved someone with Lupus lately?
Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I ...
More: After saying hello to my guests, I say #hellokeurig and feel like the perfect host
How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a ...
Please take the time to read Christine Miserandino's personal story and analogy of what it is like to live with sickness...
Sometimes you just gotta have a sense of humor! The top ten worst suggestions commonly given to someone with a chronic...
I have an invisible illness. To look at me you would see a short, fat, middle-aged grandmother. Sometimes I walk with a...
Before I even get started with this article, let me state for the record, that for those who have been approved for shor...
Pay no attention to the girl behind the smile... It has been said by many people that I am a very good actress. "But ...
