Reading “A Daughter’s Perspective” and wondering about my own daughter…

 

I just published an amazing article written by a guest writer Rebecca Geraghty. I must admit, that after doing my last read of the article, I am crying. I am 32 and my daughter will be 3 very soon. I wonder if my daughter will have the same thoughts of the author? I wonder what she will grow to know about Lupus and about her mother? Because I was diagnosed at 15 long before she was even a thought, a mommy with Lupus is all she knows. To be honest I have been sick most if not all of her young life. She has visited me in hospitals, seen me in a wheelchair, met my IV nurse and sees me take medicine every day. This was nothing we “hid” from her.  I guess I just wonder…

I wonder what the “right thing” to do is all the time.

I wonder what she is thinking at this young age. What does “sick” mean when you are 3?

Sometimes I even wonder if this will make her a more compassionate, caring, loving and maybe even philanthropic person.

I guess I just hope and pray that advances in lupus medicine and research will stop her from ever really experiencing the hardships lupus brings at times. Who knows by the time she is 20 maybe they will find a way to keep Lupus in remission, or maybe even a cure. We can all hope.

Thank you Rebecca for being an amazing daughter and just by your writing, your character, and now your passion I know somehow my daughter will turn out just fine. 🙂

-Christine

©2024butyoudontlooksick.com
  • Lisa Currall

    I have a rare tri-fecta of diseases/disorders. Through many procedures, brain surgery, spinal cord surgery and daily living in our medical circus, my children have grown into people who care for others in a way that is very rewarding to me.

    The guilt, frustration, anger etc. was more than I thought I could cope with when it all started but because there were no choices about all they had to do in our home and for me, they stepped up to the plate and learned far more than I would have even attempted to teach them had I remained healthy. They think nothing at all about what they can do and just shrug their shoulders when praised. I can see the tremendous good this mess has produced.

    Ask an adult child of someone who is sick and dealt with it fairly well and you’ll hear how they learned so much, and admire that parent. All of our children have inherited what I have so they learn not only by sacrificing for me but for their siblings. They are truly amazing. I am allowed to be prideful because it isn’t anything I did 🙂

    Your 3 year old will not know any different and she will have compassion, empathy, and a love for life like you do. Look how you serve others, no sickness can mask that rare quality.

    Blessings, Lisa

  • maura p

    I’m thinking Olivia will know that her parents and grandparents love her very much and did everything possible to make her life as normal as possible. Will she be compassionate to those dealing with health issues — I can’t imagine otherwise. Children learn by example and you have been a very positive role model for her.

  • Marti

    Thank you Rebecca for giving me a different sort of view. I to often wonder how my disease is affecting my children. Thank you for being so honest and truthful. It really touched my heart.