When You’re Not Sick Enough

 

Before I even get started with this article, let me state for the record, that for those who have been approved for short or long term disability, you deserve it. You’ve suffered just as much, if not more than any of the rest of us and I do not begrudge you a thing. In fact, I understand that it’s a double edged sword. You aren’t happy about the fact that you need disability, but to simply survive, it is much needed and warranted.

Now, that being said, I wonder sometimes exactly where and when I fell through the proverbial cracks. I have a diagnosis. I actually have five diagnoses. I have the MRIs and CT scans to prove the 90 year old woman inside is cleverly disguised as a 37 year old female powerhouse on the outside. I most definitely have the monthly medical bills, which probably will be finally paid off by my great-great grandchildren, to validate my repetitive emergency room visits. I have all of this and more, so why do I keep getting denied disability?

Simple.

I’m not sick enough.

That statement is quite an emotional conundrum to me, as I don’t know whether to laugh till I cry or cry till I laugh. How in the world can I not be sick enough? How can the tears I cry alone in the early hours of the morning because I know it’s going to be a struggle to even get out of bed, be belittled to the point of humiliation? I had so many questions swirling around in my head that it was making me dizzy until a former rheumatologist of mine, let’s just call him Dr. HeadUpMyOwnHiney, gave me the cold hard truth as apparently others saw it. I didn’t look the part.

Thus befalls the curse of the invisible illness.

I have been turned down for disability more times than I even care to share with you all. I have begged, pleaded, cried and would have gladly paid someone off, but the answer is always the same. “You are still able to work a full time job.” Yeah, I can. I can most definitely work a full time job. I can even get up at dark-thirty and drive an hour to said full time job, where I end up putting in a 10 hour day fueled solely on caffeine and Skittles. I can also come home, never cook for my family, never play with my children never put my son to bed and say his prayers with him as I kiss him goodnight. I can’t do that because I can’t climb the stairs at the end of the day. I come home and go to bed. I stay there until the entire process starts anew the next day. And weekends? Forget about it. Very rarely do I even get out of pajamas for the entire 48 hours of the “weekend”. (If you could see me, I would be doing air quotes as I show off my perfected eye roll). My body is broken, I’m sick more than I’m not and until recently the “Sunday” part of my “weekend” was spent with my head in the toilet due to one gnarly shot of chemo.

No, I absolutely am capable of working. I work my rear end off for the craptastic insurance I have that left me with thousands of dollars of medical bills and a penchant for passing on much needed testing because I can’t afford the out of pocket part of my deductible.

Here’s the stripped down truth: That healthy glow I have is self-tanner. It’s a nice orange color that makes me look like I’ve been rolling around in an open bag of Doritos because the rash underneath mixes with the tanner. I’m thrilled that my skin shade of “Oompa Loompa” impresses you. The bouncy volume in what’s left of my hair is a direct result of 45 minutes of teasing it with a fine tooth comb so much that Peg Bundy would be jealous of the height. The sharp business suit I wear to the doctor’s office is because apparently it is frowned upon to wear sweats, t-shirt and flip flops to work. You know…because of that “fired” thing that I try to avoid. And finally, that strong put-together exterior that just stares intently at you (I’m talking to YOU here, Dr. HeadUpMyOwnHiney) as you tell me you will NOT agree to support me in any litigation for disability, is because I won’t give you the satisfaction of using tears to prove my pain. I save those tears for when I’m alone in my car outside your office, where you can’t see me…where no one can see me.

I’m constantly reminded of the phrase “looks can be deceiving” because I live it everyday. I will continue to push myself until something gives, whether that be THE system or MY system, because I just don’t have any other choice right now.

Because I don’t look sick.

 

Article written by Senior Editor, Stephanie Kennedy.

Stephanie lives in Fayetteville, NC and is the mother of 3 always hyperactive and occasionally adorable children. She was diagnosed with Systemic Lupus Erythematosus in 2001 and in the time since, has added Scleroderma, Hashimotos and Celiac diseases. In her day-to-day life she is a Community Relations Specialist (aka, marketing and creative hodgepodge facilitator) and a part-time blogging snarkzilla. She can always be found somewhere in social media-land causing some sort of trouble. Find her on twitter at @steph_in_nc or on facebook at Stephanie Welborn Kennedy.

©2022butyoudontlooksick.com
  • Patricia

    OMG That is horrible! So sorry.

  • Patricia

    Thankyou so much for sharing this info. I too may become homeless soon as I can’t pay the mortgage anymore. I never thought about it before I became ill, but I wonder how many people are out on the streets because they are very ill and were denied social security. Why is our government doing this to us? I worked for years and now I’m just forgotten. I wish you well and everyone who’s suffering through this.

  • Patricia

    This is just awful! I’m so sorry for you and everyone whos suffering terribly and can’t get the help we need and deserve. I know someone who has disability for just carpal tunnel and seems like so many of us who posted on here have alot of really serious and multiple illnesses. I’m not saying he shouldn’t get his disability but so many of us should as well.

  • Patricia

    Hi all, My name is Patty. I worked hard all of my life and participated in many sports. I would love to work again and be active in life. But have suffered multiple illnesses and pain over the last 4 years. I too have been denied disability. I am definitely NOT happy that you all have gone through this as well, but feels better to know I’m not alone. I’ve had one diagnosis after another and have felt well for short times in between. I had a dr.tell me, and the disability judge, that I just wanted pain meds because I would end up in the ER in severe pain when he would do nothing for me. I feel so desperate. I’m going to lose my house soon and I’m just so hopeless. I don’t know what to do anymore. My disability is being appealed but that could take months and could be denied again. The judge said one reason I was denied is because I could take care of myself, but it would take 2 or 3 hours to just wash and brush teeth etc. Is there something we can all do together? I know it’s hard as we all are suffering but somethings got to be done. I wish you all well.

  • beth

    Stephanie,
    I just re-read your post and I know from experience what you’re going through. I’ve been sick for the last 12 years. In the past 3 years I’ve been hospitalized in the ICU 5 times. In addition to the lung problem that keeps landing me in the hospital, I also have fibromyalgia, dysautonomia, PTSD, depression and chronic fatigue syndrome. I’ve been begging my doctors for years to declare me disabled with out any luck. I can’t blame them in a way. Firstly they are likely thinking that it would be impossible for one person to have this many issues and secondly…they’re healthy folks. They’ve never suffered from chronic, debilitating pain and fatigue. They have 100 spoons when they start their day. They cant imagine having any of our chronic issues. What it feels like to wake up tired with pain throbbing throughout your whole body- pain so bad that you’re positive your hair hurts. Your skin is tender to touch, you have a migraine and are nauseous…. They cannot possibly understand what it feels like to wake up this way with multiple, debilitating issues.

    Any way. I am hoping to give you some hope. All of the sudden 2 of my doctors are willing to sign me out of work for long term disability. Its gonna be tough on the budget and I feel a little guilt about not working- but I’m doin it! I’m scared and nervous about this new chapter in my life but I know work is killing me. So I’m doin it!

    I will send good thoughts your way and hope that one of your doctors will go to bat for you. I know you’re suffering and I am so sorry for that. Try to keep hanging on and just do the best you can.

  • Kelly Leone

    I am a 40 yr old with a proven and backed-up diagnosis of a liver disease i was BORN with! with this disease is a snowball effect of 7 other physical but internal ailments in me, including portal hypertention, gastritis, enlarged spleen and only 1/2 a pancreas. because of all of this, i don’t eat or sleep well, i can’t regulate my own body temperature, i have a lowered immune system and a hard time absorbing certain vitamins. and social stress causes me to bleed from one of my inflamed vericose veins branching from my portal vein… sending me to the ER and having to be in the hospital for at least a week, with a home recovery time of another week… i have been denied disability 6 times in the last year alone, and cannot keep up with my hospital bills. when will the government/ social security people realize that there are people out there in desperate need of help??

  • Christian matea

    Thank you for sharing. I felt so alone in my SocialSecurity denial. I have 4 medically proven diagnosis. Everyday I either roll out of bed, have my husband help me out of bed or sleep sitting up on the couch (if I sleep at all) because the pain is too much. I sit to brush my teeth, sit to get dressed if I’m able or just don’t bother some days. Their reason to denial: I can walk by myself and although it may cause pain, they say I can still sit and do work (even though my records say it is painful for me to sit, stand or lay down any length of time). So the job search begins because I can’t afford to be sick. I have had so many procedures done to get rid of the pain, I’ve lost count. That makes no difference to them. I can walk and I can sit, so I can work. Pain means nothing to them. It’s a shame since I know someone who has ADD and she qualified within a month. Some thing needs to change. In the meantime, I’ll continue to walk hunched over, with a limp and exhaust myself with work at the office and at home. Again thank you so much for sharing!

  • Beth

    Stephanie,
    I feel your pain. I too have about 5 diagnoses and cannot get a doctor to say I’m disabled. I am working only 32 hours per week and have the same routine you describe. I come home and fall into bed. My weekends are spent in pajamas on the couch and I’m not fully able to clean my house, cook, etc. I used to work the hours you describe but I just can’t do it anymore. I don’t have the energy to do any of the things I used to enjoy. I hardly even remember what joy is. I’m sick and tired of being sick and tired. Not only do I have to convince friends and family that I’m really sick I have to convince my doctors too. I’ve been to atleast two dozen doctors with no luck. There’s ten years worth of documentation! My symptoms are worsening, not improving. I run myself ragged (even at 32 hours per week) until I’m in the hospital (5 times- twice for respiratory failure and had to be on a ventilator). But no. I’m not sick enough. Don’t even get me going on medical a bills! I can relate to that too. It’s beyond frustrating.

    Thank you for sharing your thoughts. It meant a lot that you shared your pain. Letting others know they aren’t alone. That’s worth a great deal to the rest of us in similar shoes. I know this is not the life you want to live. It’s not the life I want to live. Always feeling ill. Feeling a weird kind of exhaustion that goes beyond just fatigue. Exhaustion that’s in your bones. Like even your cells are tired and miserable. I am proud of you for getting up and going to work every day. I also understand that it sucks what small amount of energy you may have and leaves nothing for the things you want to do. I wish you luck on your disability journey and am sending good thoughts your way. Please try to take care of yourself.

  • Vivian Adam

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  • Leah Rays

    SENIOR DR AGADAGUDU , I AM VERY GRATEFUL TO YOU FOR YOUR TRANSPARENCY AND ASSISTANCE IN CURING MY HIV WITHOUT ANY HEARTACHES AND STRESS !!!

    I want to express my total thanks and utmost gratitude to this great man { Senior Dr Agadagudu SuperPower } for helping me cleans out my Hiv from the postive status to a negative status with his sprititual/medical excellent proofs to behold and due to this reason , i am very happy and grateful to this great powerful doctor for not allowing my enemies laugh over me and This is why i have decided to thank him and give kudos to him just for bailing me out of this type of medical difficulty that has eating me .. both emotionally and socially and this desease is currently eating deep into the world as this has lived a whole lots of persons out of fear and confusion .. since we all know the outcome of this deadly virus .. which is >>> DEATH …When i first got the result from the laboratory in the regards to my infection with this deadly virus .. i thought that all hopes was lost and as a result of my loniliness and deep pains that i could not open up to anyone ,i started attending Hiv awareness seminer and frequent conselling stuffs and not just that , i also began my checking out through the online world to see if i could come across the principles which could assist me throughout this period of my HIV POSITIVE STATUS, Relunctantly , i clicked on a testimony on facebook of one woman called Faith Clive from jamaica and i read through out her sad stories of how she got infected and how she was stereotyped and resticted in the society even by her friends and a few family members but God was always on her side as she meant a Genuie Hiv cleansing doctor online { Dr Agadagudu SuperPower } who helped her have her HIV CLEANSED / CURED TOTALLY in 9 days with a %101 percent guarantee and due to all this that i saw concerning her… I believed her as i saw that we were having almost the same story and history ,I copied the email address of the Senior Dr Agadagudu SuperPower{ [email protected] } and this was how i got to communicate with the said doctor for a cure and after my consultation with him i was having a few doubts because my mum made me understand that the only way was medical and not spritual as she adviced me not to proceed because there was no generalproven cure for the Hiv virus but upon my constand conversation with this great doctor… i latter found out that there are still people who are kind and genuie in this world because i was initially meant to understand that there are no real cure for now but he gave me several reasons why he has the cure for this deadly virus and why he has decided to assist man kind with his cure ….. all thanks to him though for this great this that he has done as i have vowed to send and tell the stories to my children unborn .. because i am free and free indeed and you can have me contacted on [email protected]. you can also contact him , if you need your ex back or if you need someone you love to love you back , he can assist you on all this without stress , because he is a specialist in this things.
    God bless you sir …. [email protected] +2347055413298

    Leah Anthonia Rally .

  • Vivian Adam

    Vivian After being in marriage with Clem for 8 years,he
    broke up our marriage, I did everything possible to bring our marriage back but all was in vain, I wanted him back so much because of the love I have for him and for our two kinds, just to make a better mom to our kinds, and to protect my family. I
    begged him with everything even with the name of our kinds,made promises but he refused. I explained my problem to someone online and she suggested that I should rather contact a spell caster that could help me cast a spell to bring
    our marriage back but I am the type that never believed in spell, I had no choice than to try it, I mailed the spell caster, and he told me there was no problem that everything will be okay before four days, that my husband will return to me before four days, he cast the spell and surprisingly in the second day, it was around 4pm. My husband called me, I was so surprised, I answered the call and all he says was that he was so sorry for everything that happened, that he is very very sorry for the pains he has put me and with our kinds, that he wanted us to return to him, that he loves us so much. I was so happy and went to him with our kinds, that was how we started living togethe happily again as one family, Since then I have
    made promise that anybody I know that have a relationship
    problem, I would be of help to such person by referring him or her to the only real and powerful spell caster who helped me with my own marriage problems and who is different from all the other ones out there. Anybody could need the help of the spell caster, his email and his cell phone contact. [email protected] +2348101571054 you can email him if you need his assistance in your relationship or any other problem.

  • Mary Ann

    My Name is Doreen Ann, From Canada I wish to share my testimonies with the general public about what this man called GREAT MUTABA has just done for me , this man has just brought back my lost Ex husband to me with his great spell within 24 hours. I was married to my husband Bill Ferio, we were together for a long time and we loved our self’s but when I was unable to give him a child for 2 years he left me and told me he can’t continue anymore then I was looking for ways to get him back until a friend of mine told me about this man and gave his contact email [email protected] then you won’t believe this when I contacted this man on my problems he cast a very strong spell for me and bring my lost husband back within 24hrs, and after a month I miss my monthly period and went for a test and the result showed that i was pregnant. i am happy today am a mother of a baby Boy,thank you once again the GREAT MUTABA for what you have done for me.Contact him on his private email [email protected] if you are out there passing through any of this problems or predicaments in your life………

  • Chizzy Peace

    Hello I am CHIZZY PEACE ,I am out here to spreed this good news to the entire world on how I got my ex love back.I was going crazy when my love left me for another girl last month, But when i meet a friend that introduce me to DR ADAGBA the great messenger to the oracle that he serve,I narrated my problem to Dr Adagba about how my ex love left me and also how i needed to get a job in a very big company.He only said to me that i have come to the right place were i will be getting my heart desire without any side effect.He told me what i need to do,After it was been done,In the next 2 days,My love called me on the phone and was saying sorry for living me before now and also in the next one week after my love called me to be pleading for forgiveness,I was called for interview in my desired company were i needed to work as the managing director..I am so happy and overwhelmed that i have to tell this to the entire world to contact DR ADAGBA at the following email address and get all your problem solve..No problem is too big for him to solve..Contact him direct on: [email protected]. and get your problems solve like me….. ONCE AGAIN HIS EMAIL ADDRESS IS: [email protected]

  • Jimmy Wallace!

    TESTIMONY ON HOW I GOT MY LOAN.

    Complement of the day, My name is Jimmy Wallace, I am from Texas USA, I have been searching for a genuine loan for the past 5 months now and all I got was bunch of scams who made me to trust them and at the end of the day, they took my money without giving anything in return, all my hope was lost, I got confused and frustrated,then i find it very difficult to feed my family, I never wanted to have anything to do with online loans again, so I went to borrow some money from a friend, I told him all that happened and he said he can help me, that he knows a honest lender that can help me, that he just got a loan from Mrs Julian Smith, he directed me on how to apply, I did as he told me, I applied, I never believed but I tried and to my greatest surprise I got the loan of $87,000 on the 23rd of April 2015 within 48 hours, I could not believe, I am happy and rich again and I’m thanking God, because i don’t believe honest lenders like this still exist upon the high rate scams all over the globe, I would recommend this honest lender to everyone! here is the email that i used in contacting her: [email protected]

  • Patsy Barrett

    Kim if you sent paperwork with 16 surgeries and 18 hospitalizations do you understand the person who opened it probably had a panic attack? And filed it in the circular file next to their desk? From what I am reading some of you need to pick the worst of your illnesses and only submit the paperwork regarding them. You are overwhelming the person at the other end and your files are being “lost”. I had one issue, 4 lumbar fusions, I sent the records about that only. I had my disability in 1 month.

  • Patsy Barrett

    I got mine in a month. I worked in the healthcare field for years and knew a COMPLETED (copies of everything! cover every angle!) packet had to arrive on the adjusters desk. Everything must be included, if they have to put it aside to request medical records or whatever you will never be approved and your paperwork lost. I called before I mailed it, got someones name, mailed it certified, called three days later to make sure they had it.

  • Patsy Barrett

    wth?

  • Patsy Barrett

    Mark I hope you are ok.

  • Patsy Barrett

    Thank you for yelling!

  • Patsy Barrett

    Keep a DETAILED journal for at least a month before you start the disability paperwork. I finally started writing down my pain level several times a day and was astounded! I was in big time pain 90% of the time! I think we try to keep putting our pain and illnesses out of our minds. Otherwise we will lose them.

  • Patsy Barrett

    Keep a pain journal as well. Detailed. By the hour if necessary.

  • Patsy Barrett

    Applause!!

  • Patsy Barrett

    My husband is no help either, 44 years married.

  • Patsy Barrett

    Recently I cry in front of the doctors. No more waiting until I get to the car.

  • Patsy Barrett

    omg

  • Patsy Barrett

    Apparently can’t read, obviously no brain.

  • Patsy Barrett

    Applause!

  • Jaime

    I have to disagree. Fibromyalgia is a diagnosis. I was thrilled when I was diagnosed because I had a name for my pain. Maybe it is true that doctors do not have a complete idea of why fibro happens…though it is thought to have something to do with overactive nervous system. I do believe that aside from my fibro I have something else going on, since I have daily neck and back pain (and vicious headaches from the neck pain), and my Mother has degenerative disc problems and ankylosing spondyilitis, but so far I am negative on those things (yet maybe in the future those things will test positive) but for now I just have fibromyalgia. And to me it is a diagnosis, because it’s the only one I have right now. And I’d rather not see it minimized.

  • Colleen Cunningham Bishop

    Fibromialgia is now recognised by S.S.

  • Ellen Toth

    after 16 years with severe RA SSI has informed me that I am no longer disabled under their rules. Although ssdi is paying me my benefits. I have been fighting SSI now since Nov. of 2011. RA and the numerous other condictions now assoicated with it such as fibromyalgia copd asthma chronic pneumonia ulcerative colitis diabeties hypertention and just last week at the age of 49 i had a heart attack after my infusion of biologicals but ssi deterrmined that i can be on my feet six hours a day and throw around ten and twenty lbs all day. so i can be a food order taker I would laugh but its too serious. the possibility exist that I will lose the ssdi benefits if the reveiw panal does not overturn the ruling. the chance of that happening is less then 2% of all cases reveiwed. the loss of ssdi will leave me no medical insurance. I cannot afford rent anywhere so im homeless and every day is hard but because I went to the gym for pain treatments and worked hard at it i am not sick enough.the state will do anything to not pay because they have basically stollen the money we paid into our insurance and they don’t want to pay our ENTITLEMENTS We purchased these benefits. And the state has taken that money and borrowed it away. I reccomend anyone with issues involving SSI to learn the rules and regs. Go to the CODE OF FEDERAL REGULATIONS you will want CHAPTER 20 and 416. everything is in there also go to ssa rulings (SSR’s)and the POMS (OPERATIONS MANUAL) EVERY RULE AND REG IS IN THERE. That is the book of everything in the goverment if you are fighting a case arm yourself. You can learn more then your lawyer in these regs.
    it is hard to be sick and people just don’t know what it is like I was called a hyprcondreact by my own mom and she was a RN. the day the doctors told me what was wrong with me I cried someone finally believed me it wasnt in my head. I felt things other people did not feel. That was now 22 years ago. my prayers are with all of you. Its not an easy road. loss is a way of life. frustration and pain will drive you to limits of sanity. and there is always someone saying well they are not that bad shes just sensitive, or its just growing pains. she wants attention.what you feel is real. and it sucks being sick all the time.

  • Blanche

    I can relate with all of you!

  • Knightfall

    HBP at 18, kidneys failed at 20 coupled with two stents on dialysis, two kidney transplants, (New York 4/18/98 Houston 12/21/09) became diabetic after the surgeons at Methodist felt it necessary to add to my extensive less of medical issues, I went back to work at Compaq in 01 and stayed after H.P. took over, but SSI penalized me. Two weeks after my second transplant failed SSI took 6400 from my account even after I showed them my P.A.S.S paper work. I’m beyond angry, I wasn’t able to work and earn my 20 points, I couldn’t pay into the system and today I spoke to an SSI rep, who I told me I may never be able to own a home due to SSI rules. I’m venting merely venting sorry.

  • Laura Graham

    I went through the entire process, even got to a courtroom and a judge (took 21 months) only to be told that because I can send an email I should have no problem getting a computer job, data entry was what they told me. I was then told NOT to appeal as the judge that denied me was very respected and his decisions never get overturned. So, I was lucky enough at that time my husband made enough to get us by. I was told to start over and file again. At the time I was actually starting into my first remission and I didn’t want to add the stress and fall right back into a flare so I decided to wait. In that time I have taken my hobby of beaded jewelry design online and now I am afraid that the court will see my online shop and deny me again even though I now have no income, (husband had major back surgery and had to walk away from a lucrative career and start all over again with a new job/school at 43 years old) I’m on Medicaid and I a bad flare. I also worry about getting denied as even when at my sickest point, my blood work looks ok. Any advice I would love to hear, thanks in advance.

  • texas78132

    MHO: Find out what is required for your diagnosis in order to be deemed ‘sick enough’. SS used to have a so called “Blue Book” that lists all diagnosis and what they require to approve Disability. Mine was RA and I had had every test and treatment and diagnosis they required and I was approved 1st time. When I completed the application forms I was told to answer every question by how I felt on my very worst day, how you feel on your very worst day. I had to rewrite every answer several times before it was approved. When I had 5 or 6 lines for ‘comments’ I attached 5 or 6 pages of comments. I include all the tests I’ve had and their results, how long you’ve been ill including dr’s names and phone numbers, how often you go to the dr, all the medications I’m taking and all the ones I tried and on and on and on, everything I could think of. So my advice is find out what it required for your diagnosis to approve disability and fill out every form required based on how you feel on your very worst day period. That’s all that really matters anyway because those are the days that make you dis
    abled.

  • joy

    My name is joy and I base in USA…“My life is back!!! After 1 years of Broken marriage, my husband left me with two kids . I felt like my life was about to end i almost committed suicide, i was emotionally down for a very long time. Thanks to a spell caster called High Priest mama aluta which i met online. On one faithful day, as I was browsing through the internet,I came across allot of testimonies about this particular spell caster. Some people testified that he brought their Ex lover back, some testified that he restores womb,cure cancer,and other sickness, some testified that he can cast a spell to stop divorce and so on. i also come across one particular testimony,it was about a woman called Sonia,she testified about how he brought back her Ex lover in less than 7 days, and at the end of her testimony she dropped High Priest mama aluta ‘s e-mail address. After reading all these,I decided to give it a try. I contacted him via email and explained my problem to him. In just 3 days, my husband came back to me. We solved our issues, and we are even happier than before. High Priest mama aluta is really a gifted man and i will not stop publishing him because he is a wonderful man… If you have a problem and you are looking for a real and genuine spell caster to solve all your problems for you. Try High Priest mama aluta anytime, he might be the answer to your problems. Here’s his contact:{[email protected]}.

  • mb

    first i want to say that i pray that everyone one who needs to be on disability gets it. i was on disability when first diagnosed with fibromyalgia and managed to get myself off of it and back to work. i was in remission for about 15 years with only brief mild to moderate flare ups. this past year it went severe and i missed a lot of work and a lot of pay. i too am struggling with the bills and getting in to work out of necessity.

    the good news is i can easily do my job at home on a computer. this would be the perfect solution to my keeping up with my job despite my physical limitations. the bad news is that my employer refuses to allow it even though it was done previously and recently. the difference? i revealed my disability and asked for official permission to do so. they do not have a hardship claim yet they denied it. i filed a discrimination claim. after months of delay they finally offered me the ‘accommodation’ of cab rides to and from work. while helpful with a mild to moderate flare it is useless with moderate to severe flares.

    their main argument has been that no one can work from home when they are sick. so my conundrum is sort of the reverse of yours. how do i get them to understand the difference between being too sick to work and a disability limitation that makes it difficult to work from the location that they desire? can any of us ever win with an invisible disability? why are there not more resources to advocate for us? what can we do?

  • jenny morgan

    My Name is Jenny Morgan,From United states. I wish to share my testimonies with the general public about what this man called priestchidi has just done for me , this man has just brought back my lost Ex husband to me with his great spell, I was married to this man called Rolland we were together for a long time and we loved our self’s but when I was unable to give him a child for 2 years he left me and told me he can’t continue anymore then I was now looking for ways to get him back until a friend of mine told me about this man and gave his contact email, then you won’t believe this when I contacted this man on my problems he prepared this spell cast and bring my lost husband back, and after a month I stoped menstrating and went for a test and the result stated am pregnant am happy today am a mother of a baby boy, thank you once again the great priestchidi for what you have done for me,if you are out there passing through any of this problems listed below:
    1) If you want your ex back.
    (2) if you always have bad dreams.
    (3)And if you have issues with having a baby
    vist his email [email protected] or call him +2349028267019

  • amyk

    what an amazingly simple, yet brilliant idea- keeping a ‘sick’ journal!!! now i need to run out & buy me a new blank book!!

  • julei lucas

    My name is sarah dixon, am from Dublin. i want to use this opportunity to thank my great doctor who really made my life a pleasurable one today. This great man DR.Zaza brought my husband back to me, i had 2 lovely kids for my husband, about 3 years ago i and my husband has been into one quarrel or the other until he finally left me for one lady. i felt my life was over and my kids thought they would never see their father again. i tried to be strong just for the kids but i could not control the pains that torments my heart, my heart was filled with sorrows and pains because i was really in love with my husband. Every day and night i think of him and always wish he would come back to me, until one day i met a good friend of mine that was also in a situation like me but her problem was her ex-boyfriend who she had an unwanted pregnancy for and he refused to take responsibility and dumped her. she told me that mine was a small case and that i shouldn’t worry about it at all so i asked her what was the solution to my problems and she gave me this great man phone number and his email address. i was doubting if this man was the solution, so contacted this great man and he told me what to do and i deed them all, he told me to wait for just two day and that my husband will come crawling on his kneels just for forgiveness so i faithfully deed what this great man asked me to do and for sure after two days i heard a knock on the door, in a great surprise i saw him on his kneels and i was speechless, when he saw me, all he did was crying and asking me for forgiveness, from that day, all the pains and sorrows in my heart flew away,since then i and my husband and our lovely kids are happy.that’s why i want to say a big thank you to [email protected] This great man made me to understand that there no problem on earth that has no solution so please if you know that you have this same problem or any problem that is similar, i will advise you to come straight to this great man. you can email him at: Email: [email protected] or call+2348103508204 ..

  • julei lucas

    Thanks once again the great Dr Zaza I am Norah lewis I want to
    share my testimony to every one here about what this great man did for
    me I was married for more than six years no child with this, my
    heart has been trouble so I don’t know what to do. And I have gone
    from one place to another still I did not found the solution of my
    problem on till one day in my office when a friend of mine came for a
    visit so I have been hiding this for every body not to share this
    problem to any one so when I see the situation on ground now my
    husband is about getting another woman, I try my best to share this
    with a friend so she advise me to contact this great man for a spell
    cast so I was not my self of telling her my problem so I ask her what
    we it take me? She said it we not take much time just three days it we
    be done then I look up and down were we I start from now? She insist
    for me to try him then I ask her for his contact she gave me his number
    and his email address his number +2348103508204 and here is the email
    [email protected] so I called him first before I email
    him to know if his is the write person so he cast the spell and am so
    happy with my husband with two kids with this, the man is great and
    his spell casting is real thanks to my friend may God almighty bless
    you all from Norah.

  • julei lucas

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  • rachel b.

    this was an article on disability

  • rachel b.

    just to let everyone know–this is not a forum for advertising psychics and spells and witch doctors.

  • Rita Shelton

    I was told I would get disability because of my disease. All I have to do is quit the job I hobble to everyday (where I get in trouble for not being able to keep up) and wait five to nine months for them to make a decision and process it all. When I asked what I was supposed to about paying my bills while I waited. I got a dispassionate shoulder shrug and was told I would get paid for those months I waited once a decision was made. Cause NC’s government apparently thinks I can pay my rent and other bills using an I.O.U.

  • Dawn

    We’ll said! Totally understand and I am with you as well as some very dear friends/family members.
    As I explained many times, I do not have a gaping hole in my body so I ‘Don’t Look Sick.’ I attempt to do what I can because there is no one else to do it for me……..
    Even hubby Abandoned us because of it……..that is okay, I will Survive and no one is allowed to steal my Joy, even if my needs are not met!
    God bless you and yours
    My prayers are lifted up for all.

  • moSio

    I typed I long response but when I signed up it was lost. Bottom line, I could have written your response. I am weary of being disregarded. I am well-educated and would never prefer some measly disability stipend to a well-earned salary but I cannot function anymore and my doctors don’t care, really. My neurologist told me I have a case of the stupids and maybe it is just migraine. My rheumatologist asks if I want pain medication, which I do NOT! Narcotics mask the pain and can make it worse rather than better. I want diagnostic tests. My primary just says she is sorry and to let her know if I need anything. YES! I need to know what is wrong with me. I had three appointments outside my home in two days, of which two I was driven to because I couldn’t after driving to the first and it left me homebound for TEN days, most of which I was bedridden and they don’t think there is anything wrong with me but fibromyalgia. The neuro asked if I wanted a test for carpel tunnel when I showed him my purple hands and feet from Reynaud’s. The lawyer I saw about my disability case said, “You have a masters, can’t you do SOMETHING?” Really? Our Congress votes itself LIFETIME pensions and premier health care on OUR taxes but sets up rules that deny us benefits for programs designed to protect us in the event we can no longer work. I am one angry taxpayer. I left a job to move cross-county and became so ill during the move that I have been unable to work for four years. Everything I worked for and saved is GONE and they think I am trying to take advantage of the system. How moronic! I want an audience with the 435 people who think they have the right to dictate who in this country deserves to live and eat and receive decent health care. I have HAD it!

  • emily

    At last my happiness has been restored by a Man named Dr ABUBAKAR ,, my name’s are miss JOY i want every one on this site or forum to join me thank this DR ABUBAKAR for what he just did for me and my kids . my story goes like this i was married to my husband for 5 years we were living happily together for this years and not until he traveled to Italy for a business trip where he met this prostitute who be witched he to hate me and the kids and love her only so when my husband came back from the trip he said he does not want to see me and my kids again so he drove us out of the house and he was now going to Italy for to see that other woman. so i and my kids were now so frustrated and i was just staying with my mum and i was not be treating good because my mama got married to another man when after my daddy death so the man she got married to was not treating i and my kids well so i was so confuse and i was searching for a way to get my husband back to me and my kids so one day as i was browsing on my computer i saw a testimony about this MAN DR ABUBAKAR of [email protected] shared on the internet by a lady and it impress me too so i also think of give it a try at first a was scared by when i think of what me and my kids are passing through so i contact him and he told me to stay calm for just two days that my husband shall be restored to me and to my best surprise i received a call from my husband on the second day asking after the kids and i called Dr ABUBAKAR and he said your problems are solved my child so this was how i get my family back after a long stress of brake up by an evil lady so with all this help from DR ABUBAKAR of [email protected] i want you all on this forum to join me to say a huge thanks to DR ABUBAKAR and i will also advice for any one in such or similar problems or any kind of problems should also contact him for help
    …..

  • Mayor Hogan

    Truthfully, i was tested hiv + positive last 7 months. i keep on managing the drugs i usually purchase from the health care agency to keep me healthy and strenghtful, i tried all i can too make this disease leave me alone, but unfortunately, it keep on eating up my life, this is what i caused myself, for allowing my fiance make sex to me unsecurely without protection, although i never knew he is hiv positive. so last few 4days i came in contact with a lively article on the internet on how this powerful herb healer get her well and healed. so as a patient i knew this will took my life 1 day, and i need to live with other friends and relatives too. so i copied out the dr oyalo balo the traditional healer’s email id: [email protected] and i mailed him immediately, in a little while he mail me back that i was welcome to his temple home wereby all what i seek for are granted. i was please at that time. and i continue with him, he took some few details from me and told me that he shall get back to me as soon as he is through with my work. i was very happy as heard that from him. so yesterday, as i was just coming from my friends house, dr oyalo balo called me to go for checkup in the hospital and see his marvelous work that it is now hiv negative, i was very glad to hear that from him, so i quickly rush down to the nearest hospital to found out, only to hear from my hospital doctor called James lewis that i am now hiv negative. i jump up at him with the test note, he ask me how does it happen and i recide to him all i went through with dr oyalo balo i am now glad, so i am a gentle type of person that need to share this testimonies to everyone who seek for healings, because once you get calm and quiet, so the disease get to finish your life off. so i will advice you to contact him today for your healing at the above details: email [email protected] contact him now to save your life he is so powerful and helpful to all that have this sickness OR +2348169340571

  • Merlin Lina

    GREETINGS…..

    My name is Mrs Merlin Lina, Am from UK, I had a serious quarrel with my husband due to my parent, my parent never like him to be my husband, but i love him so much that i will rather die to let him go off me, that was how i met this great man of DR. TEBE online, he told me that everything will be fine that he can do a spell that will make my parent love him and allow me to marry him without any quarrel thoroughly it came to pass my mum and dad love him most than before we are now happily married,please help me in thanking him for his help, here is the email: [email protected] ALSO CONTACT HIM FOR HELP IF YOU HAVE ANY PROBLEM. You can call him with this number: +2348143048153.

    YOU CAN ALSO READ MY TESTIMONY ON MY BLOGGER LINK http://linamerline05.blogspot.com……

  • Merlin Lina

    GREETINGS…..

    My name is Mrs Merlin Lina, Am from UK, I had a serious quarrel with my husband due to my parent, my parent never like him to be my husband, but i love him so much that i will rather die to let him go off me, that was how i met this great man of DR. TEBE online, he told me that everything will be fine that he can do a spell that will make my parent love him and allow me to marry him without any quarrel thoroughly it came to pass my mum and dad love him most than before we are now happily married,please help me in thanking him for his help, here is the email: [email protected] ALSO CONTACT HIM FOR HELP IF YOU HAVE ANY PROBLEM. You can call him with this number: +2348143048153.

    YOU CAN ALSO READ MY TESTIMONY ON MY BLOGGER LINK http://linamerline05.blogspot.com