March Is Endometriosis Awareness Month

Endometriosis (endo) is a reproductive disease that affects an estimated 176 million girls and women worldwide. The cause is unknown and there is no cure. Symptoms vary from woman to woman, making it a very confusing disease to understand, live with, and treat. Symptoms can include painful period

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The

The “spoonie” Small Print

Batteries not included. Shipping and handling extra. Minimum purchase required. Small print is everywhere and on just about everything. I come with a Spoonie version of small print: if I feel up to it. Whenever I make plans, I always have to add “if I feel up to it.” I never know how I will f

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Get Well Gifts from The ButYouDontLookSick.com Store

Looking for a unique get well gift? Have you made a rule to not let Lupus get you down? How about a Tee shirt that reads ‘I am Stronger than Lupus!’? Looking for the right thing to say to those who tell you that you are always tired? We think a T-shirt that says ‘I am Too Tired To Argue With Y

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The High Price of Understanding

The High Price of Understanding

Remember when I was thankful my brother didn’t get my illnesses? He’s beginning to get it. After Justin graduated college in May, he moved back in with my parents until he could tie up loose ends and leave the area. My parents live on a lake, so Justin was enjoying a great summer. Until

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The University of BYDLS

The University of BYDLS

I recently started dating a new guy--we'll call him "T". He’s going to a local university for his Master's in Industrial Engineering. He's from India, where he did his undergrad work. Our first date was spent talking of current events, religions, cultural differences, and politics. I always hold m

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1-800-Toll Free Numbers for Health Information

1-800-Toll Free Numbers for Health Information

The list below are toll free phone numbers for health information (US, unless stated otherwise). This alphabetical list might help you in your quest for more disease specific medical information. 1-800-Toll Free Numbers for Health Information Al-Anon/Alateen World Service Office Headquarters,

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I'm Thankful He Doesn't

I’m Thankful He Doesn’t “Get It”

“Your cells react to bacteria and viruses differently than mine. You don't get sick, I do. That's also clear…We're on the same curve, just on opposite ends.” Elijah Price, “Unbreakable.” I want to introduce you to my brother Justin. He’s three years younger than me; same parents, same

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A Spoonie Review of MLB.tv

A Spoonie Review of MLB.tv

I became a baseball fan a few years before my endometriosis diagnosis. I’m very glad I became one, because the countless hours spent in bed or on the couch produce much boredom, and baseball provides excitement, passion and also something other than my health to talk to friends and family about. T

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Product Review: I Lost A Lot, But I Found The NuBra!

Product Review: I Lost A Lot, But I Found The NuBra!

We've all had to give up many things since becoming 'professionally chronically ill'. Slinky dresses maybe? High heels? Pantyhose or Tights? Pants? But the thing out of all of the things I've missed having daily since getting sick, is my bra!! My body is too swollen & tender to be able to be

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Losing the Battle...But Winning the War

Losing the Battle…But Winning the War

“You ever had one of those wars where everything goes wrong?” Hawkeye, M*A*S*H From the earliest history classes, we’re taught how it’s very hard to win a war fought on two fronts. You can easily be overtaken. If you start to ignore one front to concentrate on the other, you’re going to

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