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justesgrl
Spoonie in Training
Joined: Fri Nov 03, 2006 4:19 am Posts: 151 Location: Sydney, Australia
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 gastroparesis
Thanks for the info LucieChan. I guess I will see what my test shows on Tuesday.
Rita
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| Fri Jul 27, 2007 6:51 am |
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ReineDeLaSeine14
Crystal Spoon
Joined: Thu Jan 11, 2007 9:25 pm Posts: 9262 Location: Connecticut...part-time Texan...and French at heart :)
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*cries*
i ate broccoli today...i can eat that and sweet potatoes but no other fiber...like no whole grain bread anymore.
i'm surprisingly okay w/dairy in small amounts...like a scoop of ice cream...and my doctor said i can eat whatever i can.
but yes...if i'm feeling good i'll eat something naughty 
_________________ ~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA) Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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| Fri Jul 27, 2007 12:44 pm |
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justesgrl
Spoonie in Training
Joined: Fri Nov 03, 2006 4:19 am Posts: 151 Location: Sydney, Australia
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 gastro
Just noticed I wrote I'm having a "gastro swallow" test. lol What I'm having on Tuesday is the gastric emptying test where you eat the radioactive meal and are scanned.
Jeez...my brain actually used to work.
Rita
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| Sun Jul 29, 2007 8:00 am |
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ReineDeLaSeine14
Crystal Spoon
Joined: Thu Jan 11, 2007 9:25 pm Posts: 9262 Location: Connecticut...part-time Texan...and French at heart :)
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don't worry...i knew you weren't going to swallow your stomach!
_________________ ~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA) Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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| Sun Jul 29, 2007 12:42 pm |
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justesgrl
Spoonie in Training
Joined: Fri Nov 03, 2006 4:19 am Posts: 151 Location: Sydney, Australia
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 gastroparesis
lol Reine
Rita
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| Sun Jul 29, 2007 5:52 pm |
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justesgrl
Spoonie in Training
Joined: Fri Nov 03, 2006 4:19 am Posts: 151 Location: Sydney, Australia
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 gastroparesis
I had my gastric emptying test today and it was totally normal. I found myself almost hoping it would be positive so I would have something to cause my high blood sugars. I know you all understand what I mean. Not wanting to have a disease but wishing for a diagnosis to explain what's causing your problems.
If nothing else, I am eliminating things that are not the problem.
Rita
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| Tue Jul 31, 2007 5:10 am |
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ReineDeLaSeine14
Crystal Spoon
Joined: Thu Jan 11, 2007 9:25 pm Posts: 9262 Location: Connecticut...part-time Texan...and French at heart :)
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Good luck Rita...sorry i can't be of much help...
I"m glad you don't have GP though. 
_________________ ~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA) Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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| Tue Jul 31, 2007 1:04 pm |
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TinkerbellK
Soup Spoon
Joined: Fri Mar 16, 2007 9:14 am Posts: 823
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oh, i read that narcotics and opiates can slow down your stomach even more - so that could mean for us GPers that we cant have NSAIDs and narcotics - looks like most pain relief is out the window!
_________________ ~K~
EDS: Hypermobility, occult tethered cord?, cervical-cranio instability, retroflexed-odontoid with pannus, CFS, CMP, Reynauds, adrenal problems, some new arthritis thing...
It's kind of fun to do the impossible" ~Walt Disney
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| Tue Jul 31, 2007 6:11 pm |
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ReineDeLaSeine14
Crystal Spoon
Joined: Thu Jan 11, 2007 9:25 pm Posts: 9262 Location: Connecticut...part-time Texan...and French at heart :)
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Well i need to have the fentanyl anyway but my dose will not be increased again...now I have Ultram as well.
NSAIDs didn't really slow my tract...they just aggravate my heartburn etc.
_________________ ~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA) Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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| Tue Jul 31, 2007 7:55 pm |
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luciechan
Baby Spoon
Joined: Sun Jul 08, 2007 7:49 am Posts: 393 Location: Southern California
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yeah, i heard that too...i take domperidone, and i dont take pain killers 1/2 hr before or after eating. Not sure, but i think that helps. I guess its a matter of weighing the benefits at the time, y'know?
_________________ Ailments: rheumatological, digestive, emotional, immunological, and neurological. Age: 28
Feel free to friend me! I am also open to pen pal requests.
"For every ailment under the sun, there is a remedy, or there is none. If there be one, try to find it; if there be none, never mind it." -Mother Goose
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| Wed Aug 01, 2007 2:06 am |
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justesgrl
Spoonie in Training
Joined: Fri Nov 03, 2006 4:19 am Posts: 151 Location: Sydney, Australia
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 gastroparesis
Thanks Stephanie. 
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| Wed Aug 01, 2007 3:42 am |
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ktrn79
Spoonie in Training
Joined: Tue Dec 12, 2006 12:04 pm Posts: 19 Location: Nashua, NH
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Just another GPer here saying hi.
_________________ Asthma, multiple food, drug and environmetal allergies, Endometriosis, Gerd, Bile Reflux, Hiatal Hernia, Barrett's Esophagus, Gastritis, Gastroparesis, Selective IgA Deficiency, recurrent Sinusitis, allergic rhinitis Interstitial Cystitis, and Migraines.
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| Thu Aug 02, 2007 5:31 pm |
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ReineDeLaSeine14
Crystal Spoon
Joined: Thu Jan 11, 2007 9:25 pm Posts: 9262 Location: Connecticut...part-time Texan...and French at heart :)
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HIIIIIIIIIIIIIIIIIIIIIII!!!!
My pain is horrible in the morning...i can't eat before 11am on a good day...1 or 2pm on a not so good one.
What helps to ease the cramping etc in the morning?
_________________ ~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA) Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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| Thu Aug 02, 2007 9:45 pm |
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TinkerbellK
Soup Spoon
Joined: Fri Mar 16, 2007 9:14 am Posts: 823
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i drink chamomile tea in the mornings sometimes, or even raspberry tea, which is for morning sickness... they are gentle on the stomach, caffine free, and at least you're getting liquids! i find that helps sometimes
_________________ ~K~
EDS: Hypermobility, occult tethered cord?, cervical-cranio instability, retroflexed-odontoid with pannus, CFS, CMP, Reynauds, adrenal problems, some new arthritis thing...
It's kind of fun to do the impossible" ~Walt Disney
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| Thu Aug 02, 2007 10:03 pm |
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fanfaire
Baby Spoon
Joined: Sun Jan 02, 2005 4:40 am Posts: 417 Location: Little house on the prairie
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Sorry to join this one so late. Don't know how I missed it.
I'm another one with the triple whammy of celiac, diabetes and gastroparesis. The diet has been one really tricky balancing act, but I manage.
The gastroparesis was diagnosed in 2003. The gastroenterologist told me I'd have to eat baby food and rice for the rest of my life, but with a lot of trial and error, I was able to figure out a better variety of foods I can (usually) tolerate.
All of the motility meds I tried had awful side effects, so my entire management regimen now consists of frequent small meals and staying upright to allow gravity to get the food through my tummy. My first meal of the day is a Boost to quell the nausea, then the next meal is the largest so I have lots of time to digest it, and the final two meals are smaller and more bland.
The worst thing about gastroparesis for me is that I cannot take pain meds. All narcotics shut my entire digestive system down.
Some foods that are considered "no no's" I can tolerate in small amounts early in the day, like very lean meat, a single bite of dark chocolate, one Splenda sweetened cola. But stuff like coffee, orange juice or peanut butter can really mess me up.
On the really bad days when I've experienced vomiting, I eliminate all fruits and veggies, even pureed or juiced ones, and focus on broths with rice noodles. If the broth stays down, then I might be able to eat an egg or two.
For morning nausea, I recommend herbal tea containing ginger. And cream of rice almost always helps me.
fanfaire

_________________ Sjogren's, celiac, asthma, neuropathy, Raynaud's, gastroparesis, diabetes, hypothyroidism, periodic limb movement disorder, GERD, fibromyalgia, IBS, chronic myofascial pain, adenomyosis
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| Fri Aug 17, 2007 12:02 am |
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