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justesgrl
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Post subject: gastroparesis Posted: Fri Jul 27, 2007 6:51 am |
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| Spoonie in Training |
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Joined: Fri Nov 03, 2006 4:19 am Posts: 151 Location: Sydney, Australia
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Thanks for the info LucieChan. I guess I will see what my test shows on Tuesday.
Rita
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ReineDeLaSeine14
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Post subject: Posted: Fri Jul 27, 2007 12:44 pm |
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| Crystal Spoon |
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Joined: Thu Jan 11, 2007 9:25 pm Posts: 9105 Location: Connecticut...part-time Texan...and French at heart :) Blog: View Blog (1)
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*cries*
i ate broccoli today...i can eat that and sweet potatoes but no other fiber...like no whole grain bread anymore.
i'm surprisingly okay w/dairy in small amounts...like a scoop of ice cream...and my doctor said i can eat whatever i can.
but yes...if i'm feeling good i'll eat something naughty 
_________________ ~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA) Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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justesgrl
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Post subject: gastro Posted: Sun Jul 29, 2007 8:00 am |
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| Spoonie in Training |
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Joined: Fri Nov 03, 2006 4:19 am Posts: 151 Location: Sydney, Australia
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Just noticed I wrote I'm having a "gastro swallow" test. lol What I'm having on Tuesday is the gastric emptying test where you eat the radioactive meal and are scanned.
Jeez...my brain actually used to work.
Rita
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ReineDeLaSeine14
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Post subject: Posted: Sun Jul 29, 2007 12:42 pm |
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| Crystal Spoon |
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Joined: Thu Jan 11, 2007 9:25 pm Posts: 9105 Location: Connecticut...part-time Texan...and French at heart :) Blog: View Blog (1)
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don't worry...i knew you weren't going to swallow your stomach!
_________________ ~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA) Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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justesgrl
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Post subject: gastroparesis Posted: Sun Jul 29, 2007 5:52 pm |
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| Spoonie in Training |
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Joined: Fri Nov 03, 2006 4:19 am Posts: 151 Location: Sydney, Australia
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justesgrl
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Post subject: gastroparesis Posted: Tue Jul 31, 2007 5:10 am |
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| Spoonie in Training |
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Joined: Fri Nov 03, 2006 4:19 am Posts: 151 Location: Sydney, Australia
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I had my gastric emptying test today and it was totally normal. I found myself almost hoping it would be positive so I would have something to cause my high blood sugars. I know you all understand what I mean. Not wanting to have a disease but wishing for a diagnosis to explain what's causing your problems.
If nothing else, I am eliminating things that are not the problem.
Rita
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ReineDeLaSeine14
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Post subject: Posted: Tue Jul 31, 2007 1:04 pm |
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| Crystal Spoon |
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Joined: Thu Jan 11, 2007 9:25 pm Posts: 9105 Location: Connecticut...part-time Texan...and French at heart :) Blog: View Blog (1)
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Good luck Rita...sorry i can't be of much help...
I"m glad you don't have GP though. 
_________________ ~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA) Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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TinkerbellK
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Post subject: Posted: Tue Jul 31, 2007 6:11 pm |
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| Dessert Spoon |
Joined: Fri Mar 16, 2007 9:14 am Posts: 723
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oh, i read that narcotics and opiates can slow down your stomach even more - so that could mean for us GPers that we cant have NSAIDs and narcotics - looks like most pain relief is out the window!
_________________ ~K~
EDS: Hypermoblty, occult tethered cord, cervical-cranio instability, Chiari?, retroflexed-odontoid with pannus, CFS, CMP, Reynauds, adrenal problems...
It's kind of fun to do the impossible" ~Walt Disney
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ReineDeLaSeine14
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Post subject: Posted: Tue Jul 31, 2007 7:55 pm |
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| Crystal Spoon |
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Joined: Thu Jan 11, 2007 9:25 pm Posts: 9105 Location: Connecticut...part-time Texan...and French at heart :) Blog: View Blog (1)
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Well i need to have the fentanyl anyway but my dose will not be increased again...now I have Ultram as well.
NSAIDs didn't really slow my tract...they just aggravate my heartburn etc.
_________________ ~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA) Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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luciechan
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Post subject: Posted: Wed Aug 01, 2007 2:06 am |
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| Baby Spoon |
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Joined: Sun Jul 08, 2007 7:49 am Posts: 392 Location: Southern California
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yeah, i heard that too...i take domperidone, and i dont take pain killers 1/2 hr before or after eating. Not sure, but i think that helps. I guess its a matter of weighing the benefits at the time, y'know?
_________________ Ailments: rheumatological, digestive, emotional, immunological, and more. Age: 27
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justesgrl
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Post subject: gastroparesis Posted: Wed Aug 01, 2007 3:42 am |
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| Spoonie in Training |
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Joined: Fri Nov 03, 2006 4:19 am Posts: 151 Location: Sydney, Australia
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Thanks Stephanie. 
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ktrn79
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Post subject: Posted: Thu Aug 02, 2007 5:31 pm |
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| Spoonie in Training |
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Joined: Tue Dec 12, 2006 12:04 pm Posts: 19 Location: Nashua, NH
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Just another GPer here saying hi.
_________________ Asthma, multiple food, drug and environmetal allergies, Endometriosis, Gerd, Bile Reflux, Hiatal Hernia, Barrett's Esophagus, Gastritis, Gastroparesis, Selective IgA Deficiency, recurrent Sinusitis, allergic rhinitis Interstitial Cystitis, and Migraines.
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ReineDeLaSeine14
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Post subject: Posted: Thu Aug 02, 2007 9:45 pm |
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| Crystal Spoon |
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Joined: Thu Jan 11, 2007 9:25 pm Posts: 9105 Location: Connecticut...part-time Texan...and French at heart :) Blog: View Blog (1)
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HIIIIIIIIIIIIIIIIIIIIIII!!!!
My pain is horrible in the morning...i can't eat before 11am on a good day...1 or 2pm on a not so good one.
What helps to ease the cramping etc in the morning?
_________________ ~Stephanie~
Unknown genetic disorder causing EDS, Dysautonomia, Asperger's Syndrome and other wacky things (ie. seizures, vision impairments, JRA) Also have Bipolar I, Borderline Personality Disorder, EDNOS and some other stuff.
I am rarely here so if you wish to speak to me please use my email provided in my profile. Thanks
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TinkerbellK
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Post subject: Posted: Thu Aug 02, 2007 10:03 pm |
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| Dessert Spoon |
Joined: Fri Mar 16, 2007 9:14 am Posts: 723
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i drink chamomile tea in the mornings sometimes, or even raspberry tea, which is for morning sickness... they are gentle on the stomach, caffine free, and at least you're getting liquids! i find that helps sometimes
_________________ ~K~
EDS: Hypermoblty, occult tethered cord, cervical-cranio instability, Chiari?, retroflexed-odontoid with pannus, CFS, CMP, Reynauds, adrenal problems...
It's kind of fun to do the impossible" ~Walt Disney
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fanfaire
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Post subject: Posted: Fri Aug 17, 2007 12:02 am |
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| Baby Spoon |
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Joined: Sun Jan 02, 2005 4:40 am Posts: 406 Location: Little house on the prairie
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Sorry to join this one so late. Don't know how I missed it.
I'm another one with the triple whammy of celiac, diabetes and gastroparesis. The diet has been one really tricky balancing act, but I manage.
The gastroparesis was diagnosed in 2003. The gastroenterologist told me I'd have to eat baby food and rice for the rest of my life, but with a lot of trial and error, I was able to figure out a better variety of foods I can (usually) tolerate.
All of the motility meds I tried had awful side effects, so my entire management regimen now consists of frequent small meals and staying upright to allow gravity to get the food through my tummy. My first meal of the day is a Boost to quell the nausea, then the next meal is the largest so I have lots of time to digest it, and the final two meals are smaller and more bland.
The worst thing about gastroparesis for me is that I cannot take pain meds. All narcotics shut my entire digestive system down.
Some foods that are considered "no no's" I can tolerate in small amounts early in the day, like very lean meat, a single bite of dark chocolate, one Splenda sweetened cola. But stuff like coffee, orange juice or peanut butter can really mess me up.
On the really bad days when I've experienced vomiting, I eliminate all fruits and veggies, even pureed or juiced ones, and focus on broths with rice noodles. If the broth stays down, then I might be able to eat an egg or two.
For morning nausea, I recommend herbal tea containing ginger. And cream of rice almost always helps me.
fanfaire

_________________ Sjogren's, celiac, asthma, neuropathy, Raynaud's, gastroparesis, diabetes, hypothyroidism, periodic limb movement disorder, GERD, fibromyalgia, IBS, chronic myofascial pain, adenomyosis
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